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how long we have been around this newsgroup

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  how long we have been around this newsgroup "SF" <SF@example.nl> - 2015-11-23 23:53 +0100
    Re: how long we have been around this newsgroup "Thip" <me@privacy.net> - 2015-11-25 15:46 -0500
      Re: how long we have been around this newsgroup "SF" <SF@example.nl> - 2015-11-26 00:11 +0100
        Re: how long we have been around this newsgroup "Thip" <me@privacy.net> - 2015-11-26 09:19 -0500

#3756 — how long we have been around this newsgroup

I had to look it up since I had another email adress in those prehistoric 
times, but I seem to have started to hang around this group at the beginning 
of 2002. In those days it was Leola who had the biggest input in the group. 
I wonder if she is still alive
When did you all came here and do you still find it helpful?
For me if this group didn’t exist I would never had heard of a treatment 
that actually works and wouldn’t have searched for help (i hope to get it at 
the beginning of next year)

https://groups.google.com/forum/?hl=nl#!searchin/alt.support.hepatitis-c/Fasting$20for$20ALT$20test$3F/alt.support.hepatitis-c/X9RpWdfUesY/yb2HAMn4ZdwJ


SF 

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#3757

"SF" <SF@example.nl> wrote in message 
news:13dd0$565398f7$54681258$58635@news.ziggo.nl...
> I had to look it up since I had another email adress in those prehistoric 
> times, but I seem to have started to hang around this group at the 
> beginning of 2002. In those days it was Leola who had the biggest input in 
> the group. I wonder if she is still alive
> When did you all came here and do you still find it helpful?
> For me if this group didn’t exist I would never had heard of a treatment 
> that actually works and wouldn’t have searched for help (i hope to get it 
> at the beginning of next year)
>
> https://groups.google.com/forum/?hl=nl#!searchin/alt.support.hepatitis-c/Fasting$20for$20ALT$20test$3F/alt.support.hepatitis-c/X9RpWdfUesY/yb2HAMn4ZdwJ
>
>
> SF

I showed up in '02.  I remember cmhDavid (who passed), Elmo, Waterspider, 
Cody....brain fog is hitting me because I know there are more.  Remember 
Mom?  Geb.  Dez Perado.  Hoofprints, of course.  Lu Tze (also gone, I 
believe).  Russ.  Cactus Jammies.  Oh, my, so many memories.  I joined the 
group immediately after I was dx'd because I thought I was going to die. 
It's almost dead, but I belong to a very active group on Facebook too. 
Matter of fact, I found Cody there! 

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#3758

"Thip"  schreef in bericht news:dbml04Flv1pU1@mid.individual.net...

"SF" <SF@example.nl> wrote in message


I showed up in '02.  I remember cmhDavid (who passed), Elmo, Waterspider,
Cody....brain fog is hitting me because I know there are more.  Remember
Mom?  Geb.  Dez Perado.  Hoofprints, of course.  Lu Tze (also gone, I
believe).  Russ.  Cactus Jammies.  Oh, my, so many memories.  I joined the
group immediately after I was dx'd because I thought I was going to die.
It's almost dead, but I belong to a very active group on Facebook too.
Matter of fact, I found Cody there!


------------------------------------
I can hardly remember people anymore that I spend time with when I was 
young, so I applaud you for remembering so many on social media. I'm not 
facebook, I'm on google+ and twitter but I never talk about hcv. I think the 
stigma is too big for that. There was a time this newsgroup wasn't available 
for me and I had to wait till it became available again. Then it was 
suddenly very empty. Another usenet group that I was in for years and years 
about pets used to be so busy till the trolls completely ruined it. Now 
noone ever visits anymore.

SF

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#3759

"SF" <SF@example.nl> wrote in message 
news:a7a8e$5656402d$54681258$11489@news.ziggo.nl...
> "Thip"  schreef in bericht news:dbml04Flv1pU1@mid.individual.net...
>
> "SF" <SF@example.nl> wrote in message
>
>
> I showed up in '02.  I remember cmhDavid (who passed), Elmo, Waterspider,
> Cody....brain fog is hitting me because I know there are more.  Remember
> Mom?  Geb.  Dez Perado.  Hoofprints, of course.  Lu Tze (also gone, I
> believe).  Russ.  Cactus Jammies.  Oh, my, so many memories.  I joined the
> group immediately after I was dx'd because I thought I was going to die.
> It's almost dead, but I belong to a very active group on Facebook too.
> Matter of fact, I found Cody there!
>
>
> ------------------------------------
> I can hardly remember people anymore that I spend time with when I was 
> young, so I applaud you for remembering so many on social media. I'm not 
> facebook, I'm on google+ and twitter but I never talk about hcv. I think 
> the stigma is too big for that. There was a time this newsgroup wasn't 
> available for me and I had to wait till it became available again. Then it 
> was suddenly very empty. Another usenet group that I was in for years and 
> years about pets used to be so busy till the trolls completely ruined it. 
> Now noone ever visits anymore.
>
> SF
>

I started FB because my family was scattered and it was a great way to stay 
in touch.  Then it grew and grew and so did my involvement.  Google has 
pretty much killed Usenet anyway, and FB is the best way to stay in touch 
with multiple people near and far.

This is the second time in two days people have told me they don't talk 
about hep c because of the stigma.  What stigma?  Are you dirty?  I'm not. 
When I was dx'd everyone, including my doctor, told me not to tell anyone. 
I didn't for a few days and then I got mad.  Why should I keep it a secret? 
I hadn't done anything wrong.  So, thanks to ash-c and the Internet, I 
educated myself and started talking.  I taught co-workers all about hep c 
and what it's like to have it.  I taught staff at the prison where I worked. 
I taught groups of inmates.  I still haven't shut up.  I figure the 
so-called "stigma" (a label I refuse to wear) will remain as long as we keep 
silent.  The more people we educate, the more we bring it into the light, 
the less impact it has. 

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