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[CFS-L] New American ME/CFS Guidelines (press release U.S. ME/CFS Clinician Coalition)

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Source: U.S. ME/CFS Clinician Coalition
Date:   August 25, 2021
URL:    
https://mecfscliniciancoalition.org/wp-content/uploads/2021/08/Press-Release-for-MECFS-Clinician-Coalition-article-on-clinical-care.pdf


Updated Clinical Guidance for ME/CFS may also help long COVID
patients
-------------------------------------------------------------

SALT LAKE CITY, UTAH - Updated clinical guidance for myalgic 
encephalomyelitis/chronic fatigue syndrome (ME/CFS), produced by the US 
ME/CFS Clinician Coalition, may also help patients who remain ill with 
Long COVID after even mild cases of COVID19. NIH's Dr. AnthonyFauci has 
said Long COVID is 'highly suggestive' of ME/CFS. This is not 
surprising. For decades, scientists have observed a prolonged illness in 
some patients following an infection. More recent research suggests 10% 
or more of adults with acute COVID-19 may go on to develop ME/CFS. But 
patients with ME/CFS have long struggled to access clinical care as a 
result of a lack of accurate clinical guidance and provider knowledge. 
The influx of so many new cases of ME/CFS has created an urgent need for 
clinicians everywhere to learn about this disease.

The updated clinical guidance from the US ME/CFS Clinician Coalition 
focuses on adults and includes:
* New diagnostic criteria requiring post-exertional malaise and other 
key features to improve diagnostic accuracy
* Efficient use of interview questions, physical examination findings, 
and diagnostic testing
* Alternative diagnoses and co-existing conditions to consider
* Pharmacological and nonpharmacological treatments
* A discussion of why previously-recommended treatments-cognitive 
behavioral therapy and graded exercise therapy-can be harmful and are no 
longer recommended

There are no FDA-approved treatments for ME/CFS. Indeed, few therapies 
have been tested in large, randomized trials. Lacking a 
disease-modifying treatment, only five percent of patients fully 
recover. However, in the experience of the authors, improvement is 
possible with appropriate care. This report summarizes their consensus 
recommendations with a variety of available treatments.

Author Dr. Lucinda Bateman notes, 'There are many steps clinicians can 
take now to improve the health, function, and quality of life of people 
with ME/CFS, including those newly ill with ME/CFS following COVID-19. 
This guidance may also help Long COVID patients, even if they do not 
fully meet criteria for ME/CFS.'

ME/CFS is a chronic, multi-system disease that often follows a viral or 
other infection, including Epstein-Barr virus and SARS-CoV-1. It affects 
an estimated 836,000 to 2.5 million Americans of all ages, genders, 
ethnicities, races, and socioeconomic backgrounds. The hallmark symptom 
is post-exertional malaise, an exacerbation of symptoms and worsening of 
function following even minor exertion. In addition, ME/CFS causes 
substantial impairment in function, profound fatigue, unrefreshing 
sleep, cognitive impairment, and orthostatic intolerance along with 
other symptoms. Patients' neurological, immunological, autonomic, and 
energy metabolism systems are impaired, leaving an estimated 70% unable 
to work and 25% bedbound or homebound. Up to 91% of people affected by 
ME/CFS remain undiagnosed.

About Us: The US ME/CFS Clinician Coalition is composed of ME/CFS expert 
clinicians who have collectively spent hundreds of years treating many 
thousands of patients. They have been principal investigators for CDC 
and NIH-funded ME/CFS research, served on the Institute of Medicine and 
government-sponsored committees for ME/CFS, and authored clinical care 
primers for ME/CFS. Over the last year, they have been researching and 
caring for people affected by COVID-19.

The article has been published in Mayo Clinic Proceedings and can be 
found here.
https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext

An accompanying video by Dr. Lucinda Bateman can be found here.
   https://www.youtube.com/watch?v=TE5HwXl1JLM


Media Inquiries only contact

Email: info@mecfscliniciancoalition.org

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(c) 2021 U.S. ME/CFS Clinician Coalition

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[CFS-L] New American ME/CFS Guidelines (press release U.S. ME/CFS Clinician Coalition) fluks@COMBIDOM.COM (Dr. Marc-Alexander Fluks) - 2021-08-27 00:13 -0700

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